Fistulas and Crohn’s Disease woes

Standard

Since 2011 my Crohn’s disease has been drastically changing. Many things attributed to my declining health. I decided to go to school full time to finish my graphic design degree and I went back to work at a 25 hour plus week job. Then added into all this is friends, family and household time. This cavalcade of stressors lead me to lose sight of eating well and slowing down.

In April 2011 I was hospitalized for a week with an abcess. Then in June 2011 I was transported in an ambulance from my hometown hospital to a bigger hospital for a week due to a UTI infection because the abcess didn’t totally go away.Then it was the same day in June of 2012 that I was again transported to the bigger hospital for a UTI infection and dehydration due to a fistula attached to my colon. In between this I also got Bells Palsy due a nervous system response of being on and off so many antibiotics.Next on August 16, 2013, again I was hospitalized for a UTI due to the same thing. My latest visit to the hospital was March 20th 2014 for the same UTI/ fistula to colon infection.

Each time I have lost 5 to 10 pounds of weight and can’t seem to gain it back. Since 2011 the doctors have wanted me to have surgery to totally remove my colon and the offending fistula. By no means is this a cure for my problems.

In 2013 I graduated with my Associates degree in Graphic Design.Yay, I finally finished my second attempt at a college degree. At the end of April of this year I quit my part-time office job.Now I have slowed down, but at 5ft 1in., I weigh 82lbs and still keep breaking out with UTI’s due to my bladder fistula to colon attachment. I also have changed my diet, but it is hard to not be tempted by flare up foods with kids and family.

My woe for surgery is because In 2008 I had a 3 month temporary colostomy bag and it was the worst experience. Also I have several relatives with ileostomy or colostomy bags who still have horrible Crohn’s or Colitis. Still I’m at a stopping point of what they can do for my Crohns because of the fistula.Surgery is almost inevitable.

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s