Living on Disabilty, is not what it’s cracked up to be!


I ‘m  a younger person (41 years old) receiving Disability payments for my Crohn’s disease, allergies asthma and scoliosis.The rules that go along with medicare and medicaid vary from state to state and can be such a pain. I’m in and out of doctor offices and hospitals several weeks every year to maintain health.

The state of Wisconsin still requires you to work to get medicaid, in order to pay for what medicare doesn’t. Also not all doctors will see people with Medicare, especially dentists.I have not seen a dentist for well over 2 years because I’d have to drive 1 1/2 hours away to see one.

Now if I work over 20 hours a week in addition to my disability our household makes too much for a family of 5. I’m not married but my significant other lives with me so his Gross income is counted with mine also.Plus my two stepkids are technically only with us part of the time so it doesn’t count as a family of 5, only a family of 3. They don’t take into account my food receipts, clothing, school lunches and extracurricular activities that are involved with 3 kids.

In April the state was in the process of canceling my medicaid  because I was working 25 hours a week or more.They review this every 6 months to a year.The medicare health system started automatically taking $105 of medicare premiums out of my check each month.They threw away my first paperwork that I turned in to appeal things before I went into the hospital because it went to the wrong office. I went into the hospital during all this and didn’t know I needed to get new paperwork to my employer and send it back all over again.

My health can be been such a roller coaster with my Crohn’s Disease that I again quit my part-time job.I now make considerably less money watching another little boy as old as my almost 7 year old. at least I don’t have to worry about a conventional job that can’t properly accomodate my health issues. It has helped me be a little more laid back when I don’t feel well and now properly care for myself.So many times I have to figure out if some bills will be paid on time because money is tighter.Throughout all this my doctors tell me I should try to not stress out over any of this.


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